Out of the Blue: October 2009

Wednesday, October 21, 2009

Wordless Wednesday - October Fun!

So far this month, we've had some attitude....

And we've had some mechanical fun...

And we've decided we don't like our picture taken; but will smile once...

When our sister gets to wear Baby Legs, so do we!!

(even if that means sometimes they are {very} pink)

We like to be matchy-matchy...

We love the fall and playing together!

Monday, October 19, 2009

Hannah and Austin and H1N1

Sometimes it seems life gets going and I forget to update...or I can't find two minutes in which to do an update. Last week was a crazy busy week.

Hannah has had her NG tube for over a week now and she is starting to adjust to it. She pulls it regularly at night, but she leaves it be during the day. She no longer has to use her arm restraints during the day and that is a huge relief. We got a lot of looks over that one, but it was the only way to keep the tube in! She started getting smart at night and she will wait until I am out of the room for a while and then remove her arm restraints. She does still wear them at night because otherwise she will pull the tube out. Most of the time she leaves the tube be, even without restraints on, during the night, but if she wakes up in the morning and is left alone, she will pull it. And she's getting very quiet in the morning, so you are never quite sure when she's awake and when she's asleep. My solution to that has been to get her up and out of her room as soon as I wake up. A few nights ago, she got very smart and we still can't figure out how she did it. She pulled her tube out - with both arm restraints on. I have no idea how she managed, but she did. The next night, she pulled it out, with restraints on, at the beginning of her feed. I went in like I usually do and checked her three times. I just checked to be sure it was still attached to her cheek, because she was kind of laying on it. She pulled it and I had no idea. I even went in and checked it again, plus then checked it when I disconnected everything and flushed her line. Steve woke up and went in to get her and her hair was matted to her head and her jammies and sheets were full of Pediasure. I now turn her over when I go in to check on her to be sure it is still in place.

Other than the fights over leaving her tube in place at night, she's doing pretty well. The triplets have not once attempted to pull it out. I am so pleased with that! Noah was checking her out the very first day and I told him "No, that makes owies for Hannah" and he has since left her completely alone. He even told Nathanial "no...owies!" one day just for looking at Hannah! It is so nice to not have that worry!

Austin was home all last week with influenza A. He said he was sick on Monday, but he's been having a lot of anxiety again lately so I assumed it was that sort of sick. I left him be, but he didn't really perk right back up around 9 like he usually does. Monday night, he started sounding awful and went to bed by 6:30! Tuesday he woke up and was just miserable and I knew he couldn't go to school again. So I took him in to the doctor, figuring it was just a cold but I knew we needed an excuse slip if he was going to miss two days. And it wasn't...he tested positive for Influenza A. We've been told that they do not run the H1N1 test because it is so very expensive but that it is too early for the seasonal flu, so we can be relatively positive he had H1N1. He was immediately put on Tamaflu, as was the rest of the family so that we could avoid anyone else getting it.

On Wednesday, I took him back in because he was having a lot of trouble breathing and said it felt like someone was sitting on his chest. The doctor he saw then said to just increase his inhaler use and add Mucinex. I was a little frustrated because he didn't believe me at first when I told him he had tested positive for the flu; then he suddenly thought maybe he should be tested for the flu; then after about 10 minutes he finally understood and looked in his chart. He didn't understand my concerns about his breathing, either, but Austin has asthma, a heart condition, and a neaurological disorder...all of which put him at a much greater risk for complications from the flu. Very frustrating. He did seem a bit perkier for about an hour that afternoon. Thursday he had a few hours of perky-ness and he was back to fighting with me by Friday afternoon. He probably could have gone back on Friday, but I wasn't sure and just figured better to be safe than sorry. Today is his first full day back and he had a ton of homework over the weekend to catch up on. Thankfully, he's a strong student and in some very un-challenging classes so he won't take much to keep up.

Noah, Aidan, Hannah, and I all got colds out of the deal, but none of us came near what Austin had and I think Tamaflu helped keep it not so bad for us! Prayerfully, we will now have healthy winter season!

Sunday, October 11, 2009

Hannah's Update - We're Home!

Hannah is home! I thought I would recap our events of the last few days.

On Wednesday morning, Hannah and I got up bright and early and headed for Iowa City. Daddy followed a few hours later after he got Austin and Aidan off to school and the triplets to a wonderful friend of ours who volunteered to take them (on top of her own TWO two year olds!!).
We arrived and they were waiting for us. She got into her room and we met with her doctor shortly after admission. Hannah was not happy for the first little while as we waited for all the admission stuff to get done because she was feeling very cooped up. I didn't want her crawling around on the floor, so she was trapped between being held and staying in the crib - which did not make her happy. After everything was done, about two hours later, we got a tour of the unit and then Hannah was able to go to the playroom. She stayed in there a bit (she loved having free reign over the toys and not having to fight anyone off!) and then we took a few toys back to her room to play with. Then she was happier!

Wednesday was a very l-o-n-g day of a whole lot of nothing. Hannah's social worker (who was the person who was setting up home health care and equipment) came in for a few minutes to tell us she did not have time to meet with us that day, but would come on Thursday to chat. I was a little frustrated because I wanted to be sure that she would get it all set up. The dietitian came in and spoke with us for a long time in the afternoon. She was awesome and very helpful. She did finally give us an estimate of how long the feeding tube will have to be in place - at a minimum of 3-6 months and quite possibly longer. At least I have that in my head now and I know what is going on. Then we discussed how we wanted to do the feedings. We could either do three bolus feedings per night, which would involve getting up three times during the night or we could do a continuous feed all night long, which would involve continuous monitoring while in the hospital. After discussing it with the dietitian, we felt that the continuous feed would work better for our family as Hannah is finally sleeping through the night. That meant a room transfer for Hannah to a room equipped with monitoring. So after the dietitian left, our nurse came in and we moved to a different pod in the unit. Hannah enjoyed the ride in her crib through the halls!

Wednesday evening, we finally had some "action." They had decided to wait on all testing until Thursday (but did not tell us that) and decided not to place the NG tube until Wednesday night right before her feeding was to start (and, again, did not tell us that either!). I was terrified and they told me that I didn't have to stay in the room while they did it,but I knew that I was going to be learning how to do it the next day, so I insisted on staying in. Hannah did not have a nap all day Wednesday, got up terribly early for her, and then finally fell asleep about 8:45. They were supposed to place the tube at 7, but that did not happen. Instead, they woke her up at 9:15 to do it. I was frustrated at that point, but there was very little I could do. It took her a couple of hours to settle down after that, but then she was happy again and she finally went down for the night at 11:45.

Every hour and a half after that, a nurse came in to check her blood pressure. Also happening about every 15 minutes, the alarms on her would start going off because the rhythm of her breathing or pulse would change. Between the shrieking alarms and blood pressure checks, Hannah and I did not get hardly any sleep on Wednesday night.

Hannah was a happy camper in the morning, though! Dr. V said that she would rewrite orders so that her blood pressure would NOT be taken except once in the morning, so that she could get more sleep. Then, around 11:30 am, Hannah's resident came in and told us he had good news for us...Hannah had tolerated her feed well and we were being discharged! What?!?!! I had not been taught anything, we had not seen the social worker, no testing was done, and I had only seen the NG tube placed once, for the very first time, in a high stress situation. I was very angry and spoke with our nurse and it turned out that the resident went over Dr. V's head and was discharging without her approval. Hannah had a full day of tests scheduled, plus teaching for me was scheduled and we were to meet with the social worker. We were not going anywhere.

She had her blood drawn for a myriad of tests right before lunch time. They blew the vein the first time and got it on the second time, so she had minimal screaming.

Daddy arrived and helped her enjoy her lunch and then Grandpa Kenny and Aunt Sue arrived for a visit. Unfortunately, that was cut short due to more testing, but she did love seeing them while she was able to!

We finally went to do the sweat test for Cystic Fibrosis about 1:30 Thursday afternoon. Hannah had not slept in many, many hours and was very cranky and irritable. She did not want to be messed with, all she really wanted to do was to go to sleep and cuddle; so you can imagine how the testing went. It was not pleasant at all. It didn't work the first time on the legs, but it did on her arm. Because it didn't work, it took longer than expected and we ended up not being done for a few hours. But we did get fantastic news - she does NOT have Cystic Fibrosis!!!!!

I was taught how to place the tube on Thursday evening. The nurse talked me through it early on and that part wasn't too bad. Then we decided to do it about an hour after she ate, so her food had time to settle and she didn't vomit the tube back up (which can apparently happen or so we've been told). I was terrified, so sent out an SOS for my prayer warriors to pray and I prayed hard for a bit. Then it was time and it went so smoothly I was absolutely amazed. I could feel the presence of God and I know I wasn't the one to place that tube, but God used my hands to do it. I also felt totally at peace and it went amazingly well! I got it on the second try and altogether with both tries, it still only took about 3-4 minutes.

On Wednesday night, my cousins Madeline and Gina came to visit us and break up our evening a bit...that was awesome. On Thursday night, Gina was kind enough to bring me dinner. It was fabulous to not have to eat hospital food or even leave Hannah's room for the few minutes to go get it! (I had been making mad dashes for all of my meals because I really didn't want to leave my baby!)

Hannah was so over-tired by Thursday evening (even though she did end up getting about a 30 minute nap) that she was just hyper by the time I tried to get her down. She fell asleep about 8:30 or so, but then we had to hook up all her monitors and the feeding tube, which woke her back up around 9:15. She was then UP. She did not settle back down until 12:30 am, when she finally just collapsed in exhaustion. However, she did sleep all night long and did not wake up again until the resident loudly entered the room and woke her at 8 am.

Friday morning, we were VERY ready to get out of the hospital and go home. Hannah and I both missed our boys dearly and just wanted to get back into a "normal" routine. We had some bumps in the road trying to get out the door (the social worker never did come to talk to me the entire time I was there and never even connected with our home health people until the very last minute), but we finally left about 11:30 am.

{Hannah is so happy to go home, she's even telling her baby about it!}

We arrived home in time to see the tail end of the homecoming parade and I was able to pick up Austin and Aidan. They were both thrilled to see Hannah and I! Nathanial and Ethan were also thrilled when they got up from their naps, but I got a {very} chilly reception from Noah. I asked him for a kiss and a hug and he ignored me for a long time. Then finally he said "NO!" when I asked and I knew at least he was speaking to me again! He finally did forgive me for being gone and we are now back to normal!

Hannah has pulled her tube three times - twice on purpose and once by accident. The first time I waited for the home health nurse to come to re-place it since she was on her way anyway. That way, Steve could see what I needed him to do and I didn't have to walk him through it all, either. It went very well and I placed it quickly then also. Since then, Steve and I have become quite the little team and we're near-experts in placing it. Not that I ever wanted to be, but I am so thankful for God steadying my nerves and helping me to do something that could have been a very difficult thing to do! Hannah has been sleeping a bit better since returning home. The first night was a bit rougher and last night she was closer to her more routine bedtime. Things are settling and going well!

Hannah has already gained another pound and a half - just since the tube was placed!! They told us that kind of gain will probably not continue, but it is awesome to see an immediate pick-up in weight! She is very happy and looks better than she has in a while. She will go in for weekly weight checks at her doctor here and then go in monthly to Dr. V in Iowa City.

Thank you for all of the prayers...it helped immensely and we really appreciated it!!!

Tuesday, October 6, 2009

Prayers for Hannah

Hannah goes in tomorrow for her NG (feeding) tube to be placed and for testing. She will be in Iowa City. We would appreciate the following prayers:

I quickly learn how to reinsert the tube
the testing will reveal something as a reason for being so small
Peace for me while learning everything
safe travels for both Steve and I
the triplets do well while staying with a very dear friend
Austin and Aidan do well while staying with another very dear friend
the home health nurse will be paid for by our insurance
Pediasure will be paid for by our insurance
Everyone adjusts quickly to Hannah's NG tube (and leaves it be!!!!)
Hannah grows quickly and can have it removed quickly

I am trusting God to get us through this - and I know He will. It's been a very difficult and stressful few weeks leading up to this. Our entire family greatly appreciates all prayers said on our behalf. Thank you so much for praying for us.

I will be unable to update the blog while we are there, but I will be updating my facebook and tweets (tweets are under the pictures in the right sidebar under "glimpses into life" or you can follow at twitter.com/calondercrew).

Trust in the LORD with all your heart and lean not on your own understanding; in all your ways acknowledge Him and He will make your paths straight.

~Proverbs 3:5-6

Monday, October 5, 2009

Austin and Hannah's Party

For Austin's birthday, Steve and I took him on a "date" with just Mom and Dad - no little people allowed. He has been wanting to go to HuHot for a very long time, so that was what we decided to do on our time out. I forgot my camera (how?? I do not know!), so I don't have any pictures of that besides what is on my phone and those are just bad. You'll have to take my word for it that we had a great time and really enjoyed our time together with just the three of us!

Hannah's birthday fell on a Wednesday, so she got a little celebration with just the family. She loved her cake that I made her and had fun listening to us sing to her!

Hannah before her cake